Tuesday, March 01, 2011
CF movie review: Jack & Jill vs. The World
Sunday, February 27, 2011
Book Update
Thursday, February 24, 2011
Waiting
Saturday, February 19, 2011
Saying No
"Can you quickly grab something from the entrance?" (that's almost as
cold as outside) - no
"Would you like a smoke?" - NO!
"Wanna eat?" - no, don't have my pills along
"Coffee?" - no, messes my stomach up to badly
"Smell this" - no, can't smell because of nasal polyps & 7 nose surgeries
"Are those drugs?" - no, I'm a health nut
"I guess you have a cold" - no, its called "Cystic Fibrosis"
"Are you trying to lose weight?" no, its hard to gain weight! Most importantly, NO, I will not stop fighting for my health and what
I believe in. NO, I will not give up because of my family & friends
and NO, I will never forget all the CF warriors who have passed on!
Wednesday, February 02, 2011
"Cystic Fibrosis" by Dr. Joel Wallach (excerpt from "Lets Play Doctor")
Sunday, January 30, 2011
Nutritional Deficiencies Are Being Attributed To Genetic Disorders
Billions of dollars have been spent on laboratory, pet and agricultural animals to learn more about birth defects. The information obtained from these studies has totally eliminated birth defects in animals.
Cystic fibrosis is a selenium and fatty acid deficiency in the fetus or newborn breastfed infant. Maternal malabsorption of selenium caused by subclinical celiac disease is the initiating cause of the selenium deficit found in the fetus. This newborn's selenium deficiency produces the fibrocystic lesions in the pancreas typical of cystic fibrosis. The cystic fibrosis infant is born with normal lungs but later they become a major problem with recurring pneumonias and pseudomonas bronchial infections which often cause lung failure to be the cause for death at a young age.
In 1958 Dr. Klaus Schwartz of Germany reported in Federation Proceedings (NIH Journal) that selenium was an essential nutrient. Deficiency of selenium produced the same pancreas lesion in test rats and mice as was seen in cystic fibrosis in humans.
In 1972 Cornell University researchers reported that chicks hatched from selenium deficient hens developed cystic fibrosis lesions in their pancreas.This "cystic fibrosis" disease in the chicks was completely reversible within 30 days in newborn chicks by supplementation with selenium. This important research information enabled Dr. Wallach to treat 450 cystic fibrosis patients with excellent results using selenium. Infants with "cystic fibrosis"started on selenium therapy at 3 months are still cured at age 12. Mothers who had cystic fibrosis children have been able to have normal childrenwhen their selenium deficiency was corrected.
Working in conjunction with 3 Chinese scientists Dr. Wallach was able to learn that 1700 children who died of Keshan Disease (a heart fibrosing illness caused by selenium deficiency in the soil) had clear evidence in 595 of these children (35 %) of the cystic fibrosis lesions in their pancreases. Because the Cystic Fibrosis gene is reportedly present in only 1 out of 2500 persons this clearly proves that cystic fibrosis is not a genetic disorder. Approaching the Keshan Disease from a different angle careful autopsy studies of 400 persons who died with "cystic fibrosis" hadcharacteristic fibrotic lesions of the heart exactly like those found in selenium deficiency in Keshan Province of China.
The reason that some mothers become selenium deficient appears to be related to food allergies which cause changes in the appearance of the gut producing malabsorption of food. Breast feeding by a selenium deficient mother makes the infants selenium deficiency worse. The presence of maternal food allergies, malabsorption syndromes and nutritional deficiencies all can lead to birth defects. Dr. Wallach believes that it is unlikely that aggressive searching for food allergies and widespread use of selenium and nutritional supplements will be pursued by physicians who are earning a comfortable living with the status quo. Unfortunately many physicians hearing about the relationship between selenium and the causation of "celiac disease" will be skeptical and not willing to use this information.
Sunday, January 16, 2011
What, Why & How Much Nutrients (Updated!)
+Proprietary Acemannan Supplement+
Organic herbs and cultured whole-food vitamins & minerals
1 tablet 3x a day
+Antioxidants+
Black elderberry possesses antioxidant properties that can help protect cells from free radical damage and may support healthy immune function.
1 tsp a day
Acai Berry Extract
1 Capsule 2x a day
+Phytonutrients+
Each Garden Veggie™ capsule contains over 3,000 phytonutrients taken from 12 whole vegetables. 4x more antioxidant power: Test show Garden Veggies delivers more antioxidant capacity (ORAC) than other brands.
1 Capsule 2x a day
+Choline & Inositol+
- Choline is a key structural component of cellular membranes
- Choline is necessary for the production of the neurotransmitter acetylcholine
- Inositol supports mental health and stable, even moods
- Inositol promotes calm, even in stressful circumstances
- Inositol supports a more relaxed attitude in those that are overly neat and orderly
- Inositol supports healthy ovarian function thereby promoting normal menstrual cycles
- Inositol may support normal, smooth skin
+Colostrum+
Colostrum is a natural source of nutrients, immunoglobulins (mainly IgG) and growth factors.
1 Capsule a day
+Papaya Enzymes+
1 with every meal
+Turmeric Root Extract (Curcuma longa)+
Turmeric & Bromelain is a synergistic combination that helps to support a healthy anti-inflammatory response
2 capsules 1x a day (45 min. before food)
As part of the gen/curc combo for DF508
1 Tablet a day taken with Turmeric & Bromlain
+Vitamin K1 & K2+
normal blood clotting function, critical for the formation of healthy, strong bone matrix
1 capsule a day
+D3 5000 IU+
1 softgel 2x a day
+Activated Charcoal+
For gas & intestinal issues
1 capsule with each meal
+Cranberry & other herbs+
+Spirulina+
Over 60% protein and is a great source of many important phytonutrients and minerals such as carotenoids, essential fatty acids, iron, magnesium, calcium and selenium.
1 tablet with each meal
**not taking while pregnant
Monday, June 07, 2010
CF Arthritis
for years it was a mystery disease/allergy for my sister Aline, she's always had CFAA (cystic fibrosis associated arthritis) the worst. It started with red spots everywhere and one of her joints swelling up and hurting... along with fever, aches & pains. She has suffered from it since she was a pre-teen.
the children CF clinic never knew what it was, she was tested for everything. the first day I was seen by my adult CF doc, I asked him about it and he said it was CFAA, pretty common in CFers.
I googled it, and here are some good webpages I found.
http://www.cysticfibrosis.ca/en/aboutCysticFibrosis/Arthritis.php
it explained everything that had been going on with my sister and as I got to be an older teen me as well... we found a good natural supplement for muscle recovery that keeps away the symptoms. if I miss taking them for a while I get a huge CFAA attack... so, I try to remember to take them!
losing sleep and a low immune system also contribute to an attack, today I got red spots and slight aches & pains. if it gets bad enough I take advil, it helps with the inflammation. the reason I believe this happened was the loss of sleep these last couple days and I may have forgotten some of my pills (OOPS).
Thursday, May 27, 2010
Wednesday, May 26, 2010
Vitamin D
Could the fact that I didn't fast, and took all my supplements that day, affect the data?
Tuesday, May 18, 2010
MARRIED!!!


Marriage life is awesome! I have a husband to do therapy on me :) lol
I'm just now having time to update websites, blogs, facebook, twitter... changing my name is a work in progress... who knew?
had surprise blood work at my last clinic which was April 8th. Still haven't found out the results but I'm guessing their good because otherwise I think I would have received a call! I'm still going to find out the results of the vit D levels (last blood test was over a year ago and they had changed the vit D required levels, it was very low). I take a "real food" vitamin and mineral supplement so I cant wait to see what the test results were like!
FEV1 was 97%! my sisters both beat me, Aline had 99% and Kate had 103%. we all have Delta F508 mutation so this is quite a miracle and blessing from God!
Thursday, March 11, 2010
CF siblings

Growing up we were known as the "3 CF girls" having someone to go to clinic with, talk to & understand what CF was like, and I couldn't imagine it any other way.
I'm the oldest of us and I want to thank my parents for having the courage to have more children and go through all the extra work to raise us the healthy way.
I want to hear about other CF siblings, parents & spouses and hear your opinions about having more kids when you already have one with CF, having more then 1 CF sibling etc.
Wednesday, February 17, 2010
Eating Fresh For CF!
*as seen on www.cysticlife.org
Running out of pills is never fun but it demands creative thinking, this time I think I just might have hit the jackpot!!!!
EATING FRESH! as in fresh fruits & veggies! you might have guessed what pills I ran out of... my probiotics & enzymes (ones I pay for and make a big difference with my digestion). So, here is what works even better or the best when in combination:
Half of my meal fresh - fave fruits & veggies:
bananas
apples
broccoli
lettuce (salad)
carrots
For probiotics I make sure I have lots of yogurt!
With the wedding, a house & transitioning to a new job finances can be tight... this is one way of saving money & not putting my health at rist!
Monday, February 01, 2010
Busy as a bee!
after months of looking for a job I finally got one! I love it and if I can I will get another, the one I have right now is 15 hrs a week so I think another part time job wont hurt.
my health has been doing super great through this very extremely cold winter after adding garlic pills to my regular supplementation.
my book is still in progress and might be paused for a big because these next few months promise to keep me on my toes at all times!
I've officially changed my website from www.rebeccaelias.org to www.cfchampion.com
I have also changed my poetry website to a blog - http://rebeccajaye.blogspot.com
Tuesday, January 05, 2010
Engaged!
Saturday, December 19, 2009
Baking Soda - Natural Mucous Thinner
"According to the Materia Medica by Walter Bastedo, sodium bicarbonate taken internally can soothe your mucous membranes and dissolve thick mucus."
So now I take 1/2 tsp of baking soda with a full glass of water (8 oz) at least once a day, if not more and I'm noticing not only thinner mucous but I'm getting more of it out!
Monday, December 07, 2009
Never get sick again - a great rational & balanced artical
Little things like weather changes, stress, exposure to germs can make you sick because your immune system is weak.
Take a look at some things that make your immune system weak....
1) Toxins: Most people today have excess accumulation of toxins and waste material in their bodies causing their body to be acidic and adding stress to their immune system function. The two main reasons for this is
a) People are putting huge amounts of toxins (mostly unknowingly) in their bodies on a regular basis and
b) their elimination channels are clogged, slow or sluggish.
c) toxins like "junk" food, medications(drugs), sugars, excess alcohol, allergens all stress your immune system, thus making it weak and unable to fight the germs when exposed to them.
2) Nutritional Deficiency:
When your body lacks nutrition, you will have a weak immune system.
Since our bodies can not produce nutrients needed for optimal health, quality food plays a major factor in keeping our cells healthy and our immune system strong. Food not only provides energy to your body, but all the nutrients that are essential for a healthy immune system.
3) Lack of drinking healthy water:
Dehydration means the cells just simply do not have enough fluid. Dehydration cause medical problems including pain, arthritis, asthma, and allergies, among other medical issues. It can affect your energy and your sleep, and the ability to get toxins/waste material out of the body.
4) Lack of physical activity:
Lack of regular, moderate exercise appears to slow down cleansing the body of certain toxins and waste products
5) Lack of sufficient rest:
lack of sleep will stress your immune system and thus increase the risk of catching a bug.
The good news is that I think you can help control or reverse your condition by doing as many as possible of the following list.
6) Chronic stress
People who are under chronic stress have lower than normal white blood cell counts, are more vulnerable to colds and other viruses and take longer to recover from them. They are more likely to experience more severe symptoms than people who are not under a great deal of stress.
The good news is you can strengthen your immune system by doing as many of the following list as possible....
1) keep practicing good personal hygiene care, wash your hands! The great plague of 1918 could have been avoided by practicing good personal hygiene.
2) get plenty of rest. During deep sleep, our body release potent immune-enhancing substances that strengthen your immune system function. By not allowing our body sufficient rest, the immune system will sputter, and as a result, not function at full capacity. We then are more likely to become ill with common illnesses. A healthy, deep sleep allows our body to release a significant amount of growth hormone that boost the immune system and aids in the growth and repair of the body.
3) get moderate and regular exercise
An increase in blood flow associated with moderate exercise helps to circulate antibodies along with white blood cells necessary to fight infection more quickly. As a result, this provides our bodies with an early warning system to ward off potentially damaging germs. In addition, the increase in body temperature as a result of physical activity may aid in inhibiting the growth of bacteria; thus allowing the body to fight infection more effectively.
4) Receiving a Regular Body Cleansing.
Body cleansing is essential because our bodies need to properly eliminate the toxic build up that has formed in our intestines (colon), which may lead to sickness and disease. Our body organs and tissues must be free of toxins for the immune system to function optimally thus enabling our bodies to receive the essential nutrients our bodies need.
5) Boost immune system by drinking plenty of filtered water.
Water is essential for all living things and keeps our immune system operating optimally while improving the way we feel, look and live. Without sufficient amounts of water, you may experience routine fatigue, dry skin, headaches, constipation, and a decrease normal bodily function which may lead to your body unable to fight off diseases. Without water we would literally dehydrate which could result in the shutting down of vital organs and ultimately end in death.
6) Eliminate all sugar and allergens from your diet.
Just a small amount of sugar has been proven to impair white blood cells up to 50% for very short periods of time. By discovering what our personal food allergies are, then eliminating or desensitizing them will help strengthen your immune system. By removing these triggers, our immune cells are strengthened in order to combat other invaders such as influenza rather than the allergen. The elimination of sugar from your diet can also strengthen immune system.
7) Eat nutritiously
Good foods to eat include organic fruits and vegetables, chloretta, medicinal mushrooms like maitake, shiitake, reishi, or turkey tail. Besides water, wheatgrass juice, aloe vera juice, or green tea are good drinks.
8) Take supplements
Supplements are needed because our bodies can not produce the nutrients necessary to maintain optimum health. There are many nutrients needed in order to maintain a strong immune system. It is very challenging in the world we live in to obtain sufficient nutrition with the foods available to us. They are over processed and void of many essential nutrients. Additionally, food is grown in soils that have been over-planted and saturated with synthetic fertilizers and pesticides. Vitamin and mineral deficiency subjects us to more diseases, aging, sickness, and the weakening of our immune system.
Best herbs include echinacea, goldenseal, garlic, olive leaf extract, elderberry, or astragalus.
Best vitamins include Vitamin A, C, or E. These are a good source of antioxidants, which will boost your immune system.
The minerals zinc and selenium also help with boosting your immune system.
As you can see, there is no one magic cure, one supplement, or one way to keep your immune system strong, but if you do most of these suggestions, you may never get sick again even when everyone around you is sick.
More details can be found at the website in the source box.
Source(s):
http://www.immunesystemrem
How I got rid of my BAD NASTY cough from CF clinic

Of course the basics:
-Lots of sleep
-Consistently take ALL my supplements!
-Apply special herbal type cream on my chest EVERY night
-Deep breathing/therapy (bought a mini massager -->)
-Fresh Air (yes, even though I live in Canada, fresh air can do a world of good for your lungs)
-LOTS of yogurt!
one thing that I added that I think made a HUGE difference was:
-Super Garlic pills
one pill is worth 3 cloves of fresh garlic, traditionally garlic has been used to treat symptoms of upper respiratory tract infections.
Time line:
Nov. 17, 2009 - CF clinic, bad cough starts
Nov. 30, 2009 - bought Super Garlic pills
Dec. 6, 2009 - slept the whole night with absolutely NO coughing
Friday, November 06, 2009
I'm finally doing it!!!!!
If any of you would like to hear specifics about my life, CF or family in my book just send me an email at chooselife828@gmail.com
Prospective title is "Cystic Fibrosis: From Sick to Healthy"
Thanks for all the support,
Rebecca
Monday, November 02, 2009
2nd hand smoke = inhaler & antibiotics
Friday Night
October 23
As a DD (designated driver) for my friends I felt it wouldn't hurt too much if I kept my mouth shut and let them smoke in thier own car. I was wrong, extremely wrong!
I already had a sore throat (I get it usually once or twice a year - at least I don't get the flu) so my immune system was already fighting off whatever that was... I've stood outside by people who were smoking but never crammed in a car with the windows closed for 15 min of smoke inhalation.
Saturday
October 24
Throat still hurting & coughing getting pretty bad. My boyfriend was amazing and gave me therapy after only 4 hrs of sleep (I woke up because of caughing).
Sunday
October 25
I had an extremely bad cough (sore throat had disappeared, like usual after 1-2 days), wheezing, lack of energy & loss of appetite - the 4 symptoms of a chest infection. I was under the impression that I needed a fever as well to think of it as anything serious. I was wrong. again.
Wednesday
October 28
Side note: yes I was dumb again to wait so long before doing something about my symptoms.
I asked my dad to confirm what I thought were the symptoms of a chest infection, when he didn't list "fever" all I could say was "I have all 4", his advice was to call the doctor and get antibiotics & an inhaler.
Knowing what needs to be done and getting it done - two totally different things!
Here is what happened in list form:
Wednesday
- called left a message for my family doctor (in hindsight I should have called CF clinic)
- got a call back just before she was leaving and was told to go to the local ER
Thursday
- got a sermon from the ER doc about the H1N1 vaccine because I told him I've never been vaccinated and don't plan to ever be! (I'll also add that he said I would die if I got H1N1)
- finally got an antibiotic!
- talked to my mom (ex-nurse), she said that my CF doc had told her that as someone with CF we need a larger & longer dose of antibiotics
- called my CF clinic & left a message
Friday
Got a call back & prescriptions faxed to my local pharmacy with a follow up check-up date set for Monday, November 2nd.
