Friday, December 02, 2011

Getting ready for Christmas

Hey everyone!

So the docs have blamed stress for any & all symptoms I've experienced. I guess that is the only explanation seeing as the ultrasound results came back completely normal. My yearly winter cough has arrived but thankfully I'm still sleeping through the night. Since my health has been so nutty lately I've also not returned to work. I know it's better for me this way but it's also sad. I LOVE Christmas (besides the fact that I get sick usually every time) but I'm hoping this year will be different! Great food, friends & family :D

Things that have kept my cough from getting worse:

Garlic oil pills
My supplement routine

My dad found some very interesting research when it comes to silver:

Definitely going on my wish list!

I got the iPhone 4S!!! Its white & so beautiful! I love it!

Merry Christmas!


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Thursday, September 15, 2011

Life Can Be Crazy

It's been a while since I've updated my blog. Honestly I was waiting for a positive pregnancy test before posting again, but since those are hard to come by & my life is exploding beyond my control I've decided to update anyways.

Lungs: had some rough days a few months back with chest pain but thankfully an x-ray came back clear.

GI: always a battle, lately with the help of activated charcoal & papaya enzymes it's been pretty good.

Pregnancy status: since my body is screwed up in almost every other way why not a little more craziness? Waiting on an ultrasound because even with blood & home pregnancy tests coming back negative my body doesn't seem to agree (see pic) and that is not the only symptom.

This is me telling my not so secret life issue, yes "time will tell" but man is the waiting annoying!

Good news: as soon as the iPhone 5 is out I'm getting one!

Friday, April 29, 2011

Fantastical Day


First I'll address how CF clinic went...

I gained more weight!!!! How awesome is that? I'm now 55.5 kg or 122 lbs! The heaviest I've EVER been! So exciting!!! Perfect weight for wanting to start a family soon....

Since I mentioned THAT, I will also tell you that Abe was very brave and got a blood test to check if he's a CF carrier. We will hopefully find out in the next few weeks.

As you can see in the attached pic, my PFT's are pretty awesome, and they are up from last clinic.

We used this time in the city as an opportunity to celebrate our 1 year wedding anniversary, we will be married 1 year on May 1st.

We went to the mall to drop off our wedding rings to get Rhodium Plating done, then spent the next few hours going into stores and for the most part window shopping. Abe did buy me a summer shirt & we both got aviators! (pics on facebook on the album "♥ a year ♥") 

Supper was spent at Mongo's Grill, its an amazing place! We will definitely be going there again.

It was a hugely fantastical day.

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Monday, March 21, 2011

Vitamin D Results!

Normal vitamin D levels 75-250

My previous vitamin D results: 32

What I changed to improve it:

-70,000 iu's of D3 a week
Plus my multi vitamin

**My most resent results: 73!**

What I've added:


I retest in another 12 weeks.

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Thursday, March 03, 2011

Saving Money with!

There are quite a few products I usually get from the health food store but recently I discovered and found a way to save over $40 per order!


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Tuesday, March 01, 2011

CF movie review: Jack & Jill vs. The World

I started watching this movie with very little expectations. I've seen what Mercy & Grey's did with CF and I was not impressed, ya it helps raise awareness but seriously, they could have done a far better job IF THEY TRIED!

So... I was watching the movie... I started relating to Jill, her independence, her reluctance to share with new people about CF, I've been asked some of the questions they asked on there SO MANY TIMES! The struggle of telling the man you love your sick - been there, done that! I have to admit, my guy reacted WAY better, although at that time I might have left out the fatal part, he neglected to ask.  After I got out of the hospital from a severe CF arthritis attack, months after we've been dating I broke down and told him EVERYTHING. He was awesome then too! :)

Anyways back to the movie! The one thing I had a problem with was her spending time in the hospital with another CF patient, IN THE SAME ROOM! but that is a minor compared to all the things they did right with the story, which was: the seriousness of the disease, the invisibility of CF (we don't look like we're sick), the coughing spells when we laugh really hard, the bunch of pills we have around, the amount of food we eat, the random hospital stays when we need a "tune up", the fighter spirit in all of us and the complete annoyance of people who don't take their health and lives seriously!

I would really love the people in my life to watch this movie, because I believe it will help them understand what my sisters (Aline & Kate) and I fight everyday.

P.S. Freddy Prince Jr. isn't bad to watch either, hehe.

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Sunday, February 27, 2011

Book Update

"Slow and steady wins the race".  Well, I'm not sure what race my book would win lol but it is going slow and steady! Which means at some point it will be done. I still need an editor, English is not my forte. 

Right now I am working on telling Abe's and my love story!

What I have completed is my regimen for staying healthy, my time doing Tae Kwon Do and any Journal entries that have to do with what I've written about... its sort of neat how its all working out.

I've dedicated an entire page on my CF website to my book, if you want to check it out go to:

I think I would like to have most of my poems in the book, perhaps one as a precursor to each chapter...

Well theres my update!

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Thursday, February 24, 2011


Seems like, at this point in my life waiting is the thing to do.

Waiting a couple more weeks to find out my blood test results, I really NEED my vitamin D to come back normal, better then normal would be ok too. Last time it was at 39 - acceptable numbers are 75-250.

Its been over 4 months of waiting for the high stress level to go down on some personal issues, I don't see it getting better anytime soon... I'm thankful for a supportive husband, great church and loving heavenly Father.

I really want a baby, so does my husband but we both want to be able to afford everything we'll need to raise a child.

Waiting is hard, trying to understand some of these things happening is even harder. At this point in my life my motto is "in everything give thanks".

Isaiah 40:31  But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.

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Saturday, February 19, 2011

Saying No

"Are you up to date on your vaccinations?" - no
"Can you quickly grab something from the entrance?" (that's almost as
cold as outside) - no
"Would you like a smoke?" - NO!
"Wanna eat?" - no, don't have my pills along
"Coffee?" - no, messes my stomach up to badly
"Smell this" - no, can't smell because of nasal polyps & 7 nose surgeries
"Are those drugs?" - no, I'm a health nut
"I guess you have a cold" - no, its called "Cystic Fibrosis"
"Are you trying to lose weight?" no, its hard to gain weight!

Most importantly, NO, I will not stop fighting for my health and what
I believe in. NO, I will not give up because of my family & friends
and NO, I will never forget all the CF warriors who have passed on!

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Wednesday, February 02, 2011

"Cystic Fibrosis" by Dr. Joel Wallach (excerpt from "Lets Play Doctor")

I copied this from a PDF document from Dr. Joel Wallach's book "lets play doctor" published in 1998. This section was found in Chapter 10. Sorry if some of it is jumbled. I can send you the original PDF if you would like, just email me at

CYSTIC FIBROSIS (mucoviscidosis): is the "crime" of
the century second only to diabetes (and that is only be-
cause diabetes affects millions and CF "only affects thou-
sands each year") in that it is preventable, 100% curable
in the early stages and can be far better managed in
chronic cases than it is currently managed by "orthodox"
medicine. Cystic fibrosis is an important fatal disease of
humans. CF was originally thought to be limited to white
populations of central European origin: today, CF has
been diagnosed in all peoples of the earth.
CF is thought to be genetically transmitted by the "or-
thodox" pediatricians, yet "they" have failed to prove
their theory despite multimillions of dollars spent in re-
search. Classically, the diagnosis is made when any two
of four criteria are present (Table 10-1), yet most "ortho-
dox" pediatricians will not diagnose CF without a posi-
tive "sweat test" (elevated level of sodium, chloride and
potassium in the sweat - greater than 65 mEq/L.

The "sweat test" has been elevated by dogma to "the
diagnostic test" for CF yet there are at least 17 known
diseases and syndromes that can give a positive sweat
test (Table 10-2), leading at least one group of investiga-
tors to refer to CF as a syndrome rather than a disease.
Initially described in 1933, CF was first thought to be the
result of a vitamin A deficiency in children dying with
celiac disease. In 1938, the term "cystic fibrosis" was
coined because the pathologist mistakenly thought the
changes in the pancreas were true cysts (fluid filled spaces
lined with normal tissue). It is well known today that
the "cysts" of CF are, in fact, a dilation of the pancreatic
functional unit (acini) with atrophy (shrinking) of the lin-
ing tissue. In 1952, the fact that congenital CF occurred
in a significant number of CF patients was established.
The foundation of the genetic theory of CF transmission
is based on the frequent congenital appearance and two
very poor papers, one published in 1913 which claimed
that two children with diarrhea had an "inborn error in
fat metabolism" and one in 1965 that did an epidemio-
logical study of a group of 232 Australian families with
CF - despite six sets of twins, the study failed to shed
clear light on the proposed genetic theory. These papers
were so poor they would not get past the letter opener at
any "orthodox" medical journal today. We have spent an inordinate amount of time on CF because this syn-

cal specialty will be eliminated by discovery, that dis-
covery will never be given to the public by the "ortho-
dox" doctors!!!
In 1978, the first .universally accepted diagnosis of CF in
a laboratory ammal was made by one of us (Dr. Joel

changes in the pancreas and liver in baby monkeys and
were confirmed by CF experts from Johns Hopkins
Wallach). ThediagnosiswasbasedoncharacteristicCF
School of Medicine, Emory University and the Univer-
sity of Chicago! Experts from NIH and the CF Founda-
tion were overjoyed - that is until they learned that one
of us (Wallach) could reproduce the CF changes with a
congenital selenium deficiency in almost any animal spe-
cies. With this revelation, Wallach was fired with 24 hours
notice and "blackballed" from research (to show you how
ruthless they are, Wallach was fired ten days after his
wife died of cancer).
It has been learned recently that the positive "sweat test"
is the result of an essential fatty acid deficiency that
causes a secondary deficiency of "prostaglandin" (very
short lived hormones) that control the sodium, chlorides
and potassium levels of the sweat!!! Remember the talk
by the distinguished
Dr. Johnathon
Leaky, Sr. who said "the more facts you have, the better
the truth you have."
The prevention of CF has been accomplished in pet, farm
and laboratory animals by the veterinary profession by
assuring adequate levels of selenium and essential fatty
acid nutriture to the preconception, pregnant and nurs-
ing mother. This is not as easy as it sounds because of
malabsorption problems (Le., celiac diseases and Crohn's
Disease) in a percentage of women!!! All things being
normal a supplementation of 200 mcg selenium per day and 5 gm of flaxseed oil t.i.d. would be adequate to pre-
vent CF.
Treatment of CF is very basic - treat the infant as early
as possible with selenium 1Mat 10-25 mcg per day. Plant
derived colloidal minerals may be used orally thereaf-
ter. Provide 5 gm of flaxseed oil orally t.i.d. Most impor-
do not correct the malabsorption problem, treatment will
only be minimally effective. In the case of older CF pa-
tients, IV essential fatty acids and 1M selenium provide
excellent management leading to a normal life expect-
ancy of 75 years!!! Compare this approach to the heart
and lung transplant offered by the "orthodox" pediatri-
cians!!! If the proper treatment is carried out, the "typi-
cal CF lung disease" will not develop. The lungs of CF
are normal at birth and only develop
bronchiectasis after chronic essential fatty acid and cop-
per deficiencies have taken their toll. Don't forget the
base line nutritional supplementation here!
We went to China in 1988 to study Keshan Disease, a
known selenium deficiency disease of Chinese children.
We studied 1,700 autopsies and found 595 cases or 35%
had pancreatic CF (remember CF is supposed to be "ge-
netic disease of children of middle European extract" -
to justify this finding the proponents of the genetic theory
will no doubt claim that a very virile English missionary
impregnated 125,000 Chinese girls and, unfortunately,
he was "carrying the gene for CF."

Table 10-1. Four Criteria For The Diagnosis
of Cystic Fibrosis

1. Exocrine Pancreatic Insufficiency

2. Bronchiectasis

3. Positive Sweat Test

4. Family History of the Disease

Table 10-2. Diseases and Symptoms That Have
Reported Positive Sweat Test (1, 3, 9, 68, 72)

1. Adrenal Insufficiency

2. Ectodermal Dysplasia

3. Nephrogenic Diabetes Insipidus

4. Glucose-6 Phosphate Deficiency

5. Pupillatonia / Autonomic Dysfunction

6. Allergies

7. Calcifying Pancreatitis

8. Anorexia Nervosa

9. Cystic Fibrosis

10. Focal Hepatic Cirrhosis

11. Derangement of Prostaglandin Metabolism

12. Hypothyroidism

13, Fucosidosis

14. Malnutrition

15. Kwashiorkor

16. Diabetes

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Sunday, January 30, 2011

Nutritional Deficiencies Are Being Attributed To Genetic Disorders

Veterinarians have learned that the institution of a healthy diet, vitamins, minerals and nutritional supplements prior to conception completely eliminates congenital birth defects[2] in animals. Dr. Joel D. Wallach D.V.M., N.D. relates that 98 % of birth defects are caused by nutritional deficiencies. He includes in this list cystic fibrosis, muscular dystrophy, heart defects, brain defects, spina bifida, cleft palate, limb defects, hernia etc. Radiation appears to be responsible for less than .1% of birth defects. Teenagers have a bigger percentage of children with birth defects than women over age 40 probably because of poor diet, lack of supplements, and their own need for supplements as growing adults competing with that of the developing infant.

Billions of dollars have been spent on laboratory, pet and agricultural animals to learn more about birth defects. The information obtained from these studies has totally eliminated birth defects in animals.

Cystic fibrosis is a selenium and fatty acid deficiency in the fetus or newborn breastfed infant. Maternal malabsorption of selenium caused by subclinical celiac disease is the initiating cause of the selenium deficit found in the fetus. This newborn's selenium deficiency produces the fibrocystic lesions in the pancreas typical of cystic fibrosis. The cystic fibrosis infant is born with normal lungs but later they become a major problem with recurring pneumonias and pseudomonas bronchial infections which often cause lung failure to be the cause for death at a young age.

In 1958 Dr. Klaus Schwartz of Germany reported in Federation Proceedings (NIH Journal) that selenium was an essential nutrient. Deficiency of selenium produced the same pancreas lesion in test rats and mice as was seen in cystic fibrosis in humans.

In 1972 Cornell University researchers reported that chicks hatched from selenium deficient hens developed cystic fibrosis lesions in their pancreas.This "cystic fibrosis" disease in the chicks was completely reversible within 30 days in newborn chicks by supplementation with selenium. This important research information enabled Dr. Wallach to treat 450 cystic fibrosis patients with excellent results using selenium. Infants with "cystic fibrosis"started on selenium therapy at 3 months are still cured at age 12. Mothers who had cystic fibrosis children have been able to have normal childrenwhen their selenium deficiency was corrected.

Working in conjunction with 3 Chinese scientists Dr. Wallach was able to learn that 1700 children who died of Keshan Disease (a heart fibrosing illness caused by selenium deficiency in the soil) had clear evidence in 595 of these children (35 %) of the cystic fibrosis lesions in their pancreases. Because the Cystic Fibrosis gene is reportedly present in only 1 out of 2500 persons this clearly proves that cystic fibrosis is not a genetic disorder. Approaching the Keshan Disease from a different angle careful autopsy studies of 400 persons who died with "cystic fibrosis" hadcharacteristic fibrotic lesions of the heart exactly like those found in selenium deficiency in Keshan Province of China.

The reason that some mothers become selenium deficient appears to be related to food allergies which cause changes in the appearance of the gut producing malabsorption of food. Breast feeding by a selenium deficient mother makes the infants selenium deficiency worse. The presence of maternal food allergies, malabsorption syndromes and nutritional deficiencies all can lead to birth defects. Dr. Wallach believes that it is unlikely that aggressive searching for food allergies and widespread use of selenium and nutritional supplements will be pursued by physicians who are earning a comfortable living with the status quo. Unfortunately many physicians hearing about the relationship between selenium and the causation of "celiac disease" will be skeptical and not willing to use this information.

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Sunday, January 16, 2011

What, Why & How Much Nutrients (Updated!)

Supplements from Vitacost you can click and go directly to the product I use! updated September 9, 2015.

+Proprietary Acemannan Supplement+
Immune Modulation Support
1 capsule 3x a day

+Phytosterols - Wild Yam Root+
Enhances the immune system & endocrine (glandular) system
1 Capsule 2x a day

Overall health
1 capsule 3x a day

+Vitamins & Minerals+
Organic herbs and cultured whole-food vitamins & minerals
1 tablet 3x a day

Elderberry Extract Syrup
Black elderberry possesses antioxidant properties that can help protect cells from free radical damage and may support healthy immune function.
1 tsp a day

Acai Berry Extract 
An exotic fruit extract rich in antioxidants. Also contains protein, unsaturated fatty acids, fiber and nutrients such as calcium, iron and thiamin.
1 Capsule 2x a day

Each Garden Veggie™ capsule contains over 3,000 phytonutrients taken from 12 whole vegetables. 4x more antioxidant power: Test show Garden Veggies delivers more antioxidant capacity (ORAC) than other brands.
1 Capsule 2x a day

+Choline & Inositol+

  • Choline is a key structural component of cellular membranes 
  • Choline is necessary for the production of the neurotransmitter acetylcholine 
  • Inositol supports mental health and stable, even moods 
  • Inositol promotes calm, even in stressful circumstances 
  • Inositol supports a more relaxed attitude in those that are overly neat and orderly 
  • Inositol supports healthy ovarian function thereby promoting normal menstrual cycles 
  • Inositol may support normal, smooth skin
1 Capsule a day

Colostrum is a natural source of nutrients, immunoglobulins (mainly IgG) and growth factors.
1 Capsule a day

+Papaya Enzymes+
1 with every meal

Helps break down food and process waste
1 capsule a day

+Turmeric Root Extract (Curcuma longa)+
Turmeric & Bromelain is a synergistic combination that helps to support a healthy anti-inflammatory response
2 capsules 1x a day (45 min. before food)

As part of the gen/curc combo for DF508 
1 Tablet a day taken with Turmeric & Bromlain

+Vitamin K1 & K2+
normal blood clotting function, critical for the formation of healthy, strong bone matrix
1 capsule a day

+D3 5000 IU+
1 softgel 2x a day

+Activated Charcoal+
For gas & intestinal issues
1 capsule with each meal

+Cranberry & other herbs+
Supports Urinary Tract Health
1 capsule a day

Manufactured with Non-GMO aged garlic and guaranteed to leave no after-odor, either through the mouth or pores, after consumption. ULTRA GARLITE is manufactured with a unique, quick cool-drying process which guarantees the allicin and other phytonutrient content to be the same as that which is present in fresh garlic.
1 Tablet a day

Over 60% protein and is a great source of many important phytonutrients and minerals such as carotenoids, essential fatty acids, iron, magnesium, calcium and selenium.
1 tablet with each meal

Relieves inflammation 
1/4 tsp with warm water at least 1 time a day
**not taking while pregnant

20-30 ppm
Kills virus' & bacteria 
Nebulize only when I'm sick or bacteria shows up in my sputum sample.