to whom it may concern:

a little something I wrote to the corrupt medical system we have to endure:

They tell me to shut up
They say it’s illegal

To share my story
To tell the truth.

They poison the sick,
Kill the innocent
All for the money
And ulterior motives.

My experience baffles their theories
Threatens their way of life,
But it doesn’t change the way they think
It doesn’t change the way they act.

So ignore the needless pain you cause everyday
And keep killing the ones you have sworn to not harm,
So supplements can’t CURE and drugs can?
Then why doesn’t it work out just like you planned.

Water for dehydration
Vitamin C for scurvy
So arrest me for what I just wrote
Because it’s illegal, right?

It’s still the truth
And no matter what you do
For the people who think for themselves
Your plans will fail

I find it fitting that this will be the first thing I put on my new website www.rebeccajaye.com

free speech & med leave

Yeah right, as if that exists... you might be wondering why I'm ranting like this. So I hate to legally take down a bunch of posts because of "non compliance" its a bunch of BULL $H!T lol

anyways, I will keep fighting the good fight...

due to some strange new complications with my CF I am now on med leave for a couple of months... I've lost 10 lbs... time to get better, eat more, change some bad lifestyle choices and get back up there!!!!

Almost One Year

So... long time no update.

I still work at Timmies, it's an awesome job and I really enjoy it. Thank-goodness I'm not supervising anymore. I think I'm too nice for that, lol. I work part time nights an evenings which works out great because I don't have to work more then 4 days in a row. Ten days in a row is just too much.

My polyps are not bothering me but they are there, I'm hoping they don't get worse.

This last October was my 3 year anniversary of no hospitalizations!!!

I'm working on putting up a website which has all my poems and lyrics... maybe a couple extras as well :) it's time I shared that part of me with the world.

On the 17th of March I will have been going out with my boyfriend for 6 months! It's been an awesome 6 months. He is so supportive and caring about my CF and all the pills I take, lol.

My car "Clifford" has been a pro this winter... it's been really cold and he's given me no problems :) he's such a good little car.

I promise the next update will be sooner then a year from now :)

Till then, God bless.

Work and Play: feat. NEW CAR!!!

Still work full-time at Timmies :) I love my job! Only supervise part-time, which is perfect because supervising full-time is just too stressful. No one needs more stress, it ain't healthy!

Moved in with my sister and her family, it was the best thing I did this year, I love the environment and my NEW CAR (2008 Pontiac wave5) rocks at life! oh and also helps with the gas to and from work :)

Dating. Finally think I might give it a whiff, no reward without risk :)

BAD NEWS:
I can feel my polyps are back... thankfully I can still breathe through my nose. I'm praying for a year without surgery. Don't want to wait 3 years for surgery again, that is the worst part of having polyps - needing surgery and NOT GETTING IT DONE! (like the Larry the Cable Guy reference?) :)

Catch-Up

Feb. 14 - Valentine's Day















The surgery went super awesome! didn't need any pain killers and was back to work 2 days after the surgery :)

the new year

a sinus infection. a week of antibiotics. another scheduled surgery.
not missing a day of work! plus the opportunity of getting my very own
apartment. life doesnt slow down, not even at the start of a new year.

--
Sent from Gmail for mobile | mobile.google.com

Don't look to become a person of success, look instead to become a
person of value. -Einstein

back from a cruise :)

I didn't get sick!!!! You should have seen the huge amount of pills I took a long. It was such a blast, I guess you'll have to be my friend on facebook or myspace to see pictures :)

Independence

I'm in my new place but haven't fully settled in yet, I didn't know I had so much stuff!

The job is going great, I really love it. I figured out after a week or two how to properly schedule my pills, eating & work so that I'm not in pain! yea! Makes work even more fun!

I should have done this months ago.

All grown up

My first week on the job is over. I definitely earn what money I'll get! Having CF and a full time job isn't easy, especially when the people there don't know you have CF or know it and don't really know what that means. I like it though, I get treated normal. I haven't quite figured out how to rightly schedule my pills, eating and working so that I'm not in pain but it's getting better. I think It'll just take time and a little experimenting.

I haven't moved into my apartment yet, hopefully by the end of the month. I love this independent stuff!

As far as my nose goes... my smell is gone again. Man, I wish my surgery had happened!

From Cambodia...

Nose News

For about a week now I've been able to SMELL! I thought it would pass but obviously it hasn't, and hopefully wont. I'm not like a super smeller now or anything, most of the time I have no idea what I'm smelling but it feels so great!

I've also been able to sleep with my mouth closed these last few weeks. That's great but I still want these polyps out. People always comment on how I sound like I have a cold :(

Cancelled :(

My Polyp surgery got cancelled! I'm on the waiting list but have no idea when it will happen. This is very disappointing but I'll get over it (once I have the surgery). Haha.

The whole Lyme Disease/antibiotics seems to be going ok. The only thing that has changed for the worse is how well my digestive system works. Things are a lot better when I have lot of probiotics.

I found out today that I'm 112 lbs. this is the heaviest I've ever been! The doctors are going to be really happy.

Ticks and Tae Kwon Do test results!

Last Thursday I found a tick attached to me. Yesterday evening I found a quarter size rash where the tick had been. Today I got put on 3 weeks of antibiotics for Lyme Disease!!!!!!!!!!!

Funny thing is that I NEVER go outside during tick season, I guess that doesn't matter when your brother and sisters do and DON'T do tick checks before hanging out in the house and in my bedroom!

Last night at the "Friends of Cambodia" fundraiser we raised $700! Over $180 of that went to the Cambodian Orphanage. This was with 50 people attending. It was an awesome evening, more people should have been there to enjoy it! Aline and I also got the shock of our lives when our Tae Kwon Do teacher was talking and said "...Something the girls don't even know is that they are RED BELTS..."!!!!!!!

Not only did we pass our Red Stripe test but we advanced to our Red Belts! OMW!!!!!!!! So yeah, good and bad things happening this week!

Tae Kwon Do competition

10 Competitors, 16 Medals and one AWESOME day!

Aline & Wolfgang were coaches and I was equipment & competitor manager.

Surgery

After seeing a specialist yesterday, I have a date for my next Polyp surgery (this will be my 7th surgery) it's August 9th. I'm so excited! Finally a clear nose... and maybe a sense of smell?

Details of my first adult CF appoinment

First thing on my list is to go see the Physio Therapist. I arrive 20 min. early because I gave myself extra time just in case I couldn't find it. We talk about how CF has affected my lungs and he's very impressed with my physical fitness level.

Then I head to eat lunch. My Physio app. was at 11 am. and my next one is at 1:15 pm. so I have sometime to eat lunch. I didn't have any cash so my debit was the only thing I could use, and the Tim Hortons booth thingy only took cash, so I ended up eating a piece of each Pepperoni and Hawaiian Pizza.

Then I headed to the clinic and right away was sent for PFT's which went really well. Then to get an X-Ray which looked awesome! and then I saw the nurse, nutritionalist and then finally the doctor. Everything was awesome!

My next app. is set for 6 months from now. sweet eh?

Officially a CF adult!

Wow! I can't believe I was so nervous about the whole transition thing. It went really smooth and I'm really going to enjoy working with the new doctor and head nurse.

My CF Creon Award party went great and the food was awesome, for the first time I tasted breaded shrimp, I could have said it was like chicken.

Here's a tip for CFer's who are graduating to the Adult Clinic:
Know your facts about fertility and Cystic Fibrosis. If there was a point system I think I would have scored a 10!

Update on running

I started this last Monday and I ran 3 out of 5 mornings. The 2 I didn't run I slept-in instead. Oops, bad me!

I can already tell that it's helping improve my lungs! Very exciting!!! I breath so big when I'm running... I can't wait till I can get to the point where I'm running a couple laps around this block.

HERE IS A BIG SECRET:

I'm working on a website about what EXACTLY I do for my CF, I mean, I totally go into big time details, no generic "I take supplements" stuff or "I use cream for my polyps", questions are going to be answered and it'll all be legal, I just used English to suit my purpose! Hehe!

Sadly, I'm not giving out the URL (web address) yet, it's not quite finished. Just wanted to let ya'll know that I'm working on that.

For updates on my book you'll have to go to http://mycfbook.blogspot.com.

Thanks!

Running

Out here in Texas I don't have Tae Kwon Do :( I miss you guys!!!!!!!!!!!!!!!!!!!!!

Anyway, so I'm going to start RUNNING! At 6 AM wake up and go for a run, hoping to start with 1/2 to 3/4 of a mile. It'll be great for my lungs and endurance training.

I need ya'll to keep me responsible with this so pop in now and then to ask me how the running's going, OK?

Thanks!

I'm in Texas

Hey! I made it to Texas! I wrote all about it on my other blog www.hopeishere.blogspot.com if you want to take a look.

Thankfully at the moment I have internet on my laptop. Hopefully it continues.

God bless