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| At our Friends Sean & Felicia's wedding :) |
I know I'm different then the typical CFer, I know my crazy treatments have made me an anomaly but deep down I still know CF will kill me (unless some random act of God happens before).
I hope to see my grandchildren, I honestly think that's real for me, for my sisters. But I see my mom & mother-in-law & I put myself in their place & I can't imagine leaving (or being taken away). They are needed here.
I'm getting old, I'm 24 and my friends are dropping like flies & each death seems to take a part of me with them. If I don't have a child in the next few years will I even see them grow up? Get married? Have kids? Those thoughts are what hit me every month when that metaphorical test comes back negative.
I'm positive, all the time - to everyone but myself. In fact I don't want people who love me to see this post. This is not the "me" that they know. But it's the me that I see in the mirror, in pictures... In this blog.
I needed to write this. I don't know why. This is one post I'm not sharing on facebook.
I have one dream I need to come true, half of it has already, the husband part. I want a child so badly it hurts. I want that family portrait. My other secondary dreams are for my hopeful future generations - I hope they travel the world, have a career that gives them great purpose & fulfillment, alongside a family who loves them for who they are. Family is #1... And I'm so lucky to have mine!
I've heard before that gratefulness & depression can not exist together. << so not true.
***I'm not saying I'm clinically depressed either***.
I can only do the best things for my health EVERYDAY. That's my plan, that's my only option, to make my life revolve around my CF. I guess I'm not dealing with that reality so good... It's never affected me so much as it does now and I know this is only the beginning. My problem? 80% of my family, friends & contacts don't get that.
No, I don't have a job STOP BOTHERING ME ABOUT THAT, CF is my job and I don't get a vacation. EVER.
No, I'm not lucky that I can't work & help provide for our dreams & future.
Yes, I'm busy all week at home, I'm trying to do treatments every day & not disrupt too much of my "normal" life.
Yes, I'm proud of this extra 10 lbs I've mysteriously found this past year, it means I can get Pregnant without worrying about my weight, I'm FINALLY 5 lbs heavier then my ideal weight. Im a 120!!!!!!!!
So to sum up...
I'm loving my life.
I'm scared it's gonna end way sooner then I'm ready for (not to say death scares me) I just wanna live before it happens.
I wish people could physically see how CF affects me EVERYDAY.
CF truly is an invisible disease.
I do my best to raise awareness without being gloom & doom (which in reality is CF).
To parents of CFers...
Fight for your own CF champions.
Give them the best nutrition you can. We are all miracles.
You amaze me!
Fellow CFers...
You guys are my people.
You understand.
You fight.
CF sucks.
My family & friends...
I'll do my best.
That's the only promise I can make.
Love you all.
God bless.
Rebecca
2 comments:
<3 We'll fight and we'll survive. I just know it =)
I've heard before that gratefulness & depression can not exist together. << so not true.
Agree. Fully agree.
And um, I can't know what it's like to lose friends at our age. :( It's something I see my grandmother go through, and I really feel for her.
But as far as the whole desire to see your dreams come true, I can relate a lot to that frustration. It's so difficult to be in a place where you almost feel stuck, and not for lack of effort or courage, or anything. But just because physical limitations hold you back.
So yeah, I don't have anything to offer, except empathy I guess. And well, the observation that you are an pretty awesome woman. :P
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